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Awareness Month - A Wrap Up
Mar. 31st, 2009 12:51 pmI can't believe how long it has been since I've posted. National MS Education and Awareness Month (NMSEAM) definitely keeps me hopping!
We are just about wrapping up our NMSEAM campaign for this year. The last MS Family Day regional event for the year was held this past Saturday in Norfolk, Va. We were all over the country this year - from Florida to California, Texas to Illinois, a total of ten states I think. I had the pleasure of hosting the program in Bethesda, Maryland, where our turn-out was so large we were scrambling for extra chairs. It's great to see whole families out together, learning and enjoying the day.
The teleconferences were a big success too, both But You Don’t Look Sick: Talking with Your Kids About MS, with Dr. Paula K. Rauch, or Keeping Connected: Real World Advice for Couples Coping with Chronic Illness with Dr. Fred Foley. If you missed them, it's not too late. Instead of transcripts, this year we're providing CDs with an audio recording. Just email a request to support@msfocus.org.
We've had a nice response to the call for MS Ambassadors, too. There's still time on that one, if you want to apply - the application period runs to mid-April. You can learn more about it and get an application form here, but I'll let you in on a few of the behind-the-scenes details. I'm going to be leading the training, and by the time I'm through with our Ambassadors, they will really know all the programs and services available to MS patients from the MSF and other MS Coalition members. And I plan to help each person develop an advocacy goal and help them achieve it! If you've got a message you'd like to share with the MS community, this is your chance.
We have a handful of MS Awareness Kits left over. This year's kit was packed with info on coping with the unpredictability of MS, and with the invisible symptoms. If you didn't receive a copy and would like one, email awareness@msfocus.org.
Finally, I'd just like to mention that we'd LOVE your feedback. If you took part in any of the National MS Education and Awareness Month activities or programs, or if you just have a suggestion for the future, drop me a comment. I'd really love to hear from you.
We are just about wrapping up our NMSEAM campaign for this year. The last MS Family Day regional event for the year was held this past Saturday in Norfolk, Va. We were all over the country this year - from Florida to California, Texas to Illinois, a total of ten states I think. I had the pleasure of hosting the program in Bethesda, Maryland, where our turn-out was so large we were scrambling for extra chairs. It's great to see whole families out together, learning and enjoying the day.
The teleconferences were a big success too, both But You Don’t Look Sick: Talking with Your Kids About MS, with Dr. Paula K. Rauch, or Keeping Connected: Real World Advice for Couples Coping with Chronic Illness with Dr. Fred Foley. If you missed them, it's not too late. Instead of transcripts, this year we're providing CDs with an audio recording. Just email a request to support@msfocus.org.
We've had a nice response to the call for MS Ambassadors, too. There's still time on that one, if you want to apply - the application period runs to mid-April. You can learn more about it and get an application form here, but I'll let you in on a few of the behind-the-scenes details. I'm going to be leading the training, and by the time I'm through with our Ambassadors, they will really know all the programs and services available to MS patients from the MSF and other MS Coalition members. And I plan to help each person develop an advocacy goal and help them achieve it! If you've got a message you'd like to share with the MS community, this is your chance.
We have a handful of MS Awareness Kits left over. This year's kit was packed with info on coping with the unpredictability of MS, and with the invisible symptoms. If you didn't receive a copy and would like one, email awareness@msfocus.org.
Finally, I'd just like to mention that we'd LOVE your feedback. If you took part in any of the National MS Education and Awareness Month activities or programs, or if you just have a suggestion for the future, drop me a comment. I'd really love to hear from you.